Paper Info
Title
Experience of de-identification system development for clinical research in tertiary hospital.
Abstract
To protect patients' privacy and to improve the convenience of research, Asan Medical Center (AMC) has been developing a de-identification system for biomedical research, which mainly consists of three components: de-identification tool, search tool, and chart review tool. The de-identification tool can substitute a randomly assigned research ID for a hospital patient ID, remove the identifiers in the structured format, and mask them in the unstructured format, i.e., texts. The search tool can find the number of patients which satisfies given criteria. The chart review tool can provide de-identified patient's clinical data for review. We found that clinical data warehouse was essential for successful implementation of de-identification system, and this system should be tightly linked to an electronic institutional review board system for easy operation of honest brokers.
Year
DOI
Venue
2013
10.3233/978-1-61499-289-9-1044
Studies in Health Technology and Informatics
Keywords
Field
DocType
Access to Information,Research Ethics,Information System
Medical education,De-identification,Clinical research,System development,Medicine
Conference
Volume
ISSN
Citations 
192
0926-9630
0
PageRank 
References 
Authors
0.34
0
7
Name
Order
Citations
PageRank
Soo-Yong Shin119617.20
Yongman Lyu201.01
Yongdon Shin301.01
Hyo Joung Choi400.68
Jihyun Park500.34
Woo-Sung Kim64910.70
Jae-Ho Lee720242.11