Title
Personal informatics in chronic illness management
Abstract
Many people with chronic illness suffer from debilitating symptoms or episodes that inhibit normal day-to-day function. Pervasive tools offer the possibility to help manage these conditions, particularly by helping people understand their conditions. But, it is unclear how to design these tools, as prior designs have focused on effortful tracking and many see those tools as a burden to use. We report here on an interview study with 12 individuals with chronic illnesses who collect personal data. We learn that these people are motivated through self-discovery and curiosity. We explore how these concepts may support the design of tools that engage curiosity and encourage self-discovery, rather than emphasize the behaviour change aspect of chronic illness management.
Year
Venue
Keywords
2013
Graphics Interface 2012
chronic illness management,effortful tracking,interview study,chronic illness,personal informatics,personal data,normal day-to-day function,pervasive tool,prior design,behaviour change aspect,debilitating symptom,healthcare,qualitative studies
Field
DocType
Citations 
Health care,Medical education,Interview study,Personal informatics,Curiosity,Computer science,Knowledge management,Human–computer interaction,Qualitative research
Conference
17
PageRank 
References 
Authors
0.95
21
3
Name
Order
Citations
PageRank
Haley MacLeod1221.46
Anthony Tang229920.48
Sheelagh Carpendale34431251.97