Title
Viewpoint Paper: Exploring and Developing Consumer Health Vocabularies
Abstract
Laypersons ("consumers") often have difficulty finding, understanding, and acting on health information due to gaps in their domain knowledge. Ideally, consumer health vocabularies (CHVs) would reflect the different ways consumers express and think about health topics, helping to bridge this vocabulary gap. However, despite the recent research on mismatches between consumer and professional language (e.g., lexical, semantic, and explanatory), there have been few systematic efforts to develop and evaluate CHVs. This paper presents the point of view that CHV development is practical and necessary for extending research on informatics-based tools to facilitate consumer health information seeking, retrieval, and understanding. In support of the view, we briefly describe a distributed, bottom-up approach for (1) exploring the relationship between common consumer health expressions and professional concepts and (2) developing an open-access, preliminary (draft) "first-generation" CHV. While recognizing the limitations of the approach (e.g., not addressing psychosocial and cultural factors), we suggest that such exploratory research and development will yield insights into the nature of consumer health expressions and assist developers in creating tools and applications to support consumer health information seeking.
Year
DOI
Venue
2006
10.1197/jamia.M1761
Journal of the American Medical Informatics Association
Keywords
DocType
Volume
lexical semantics,bottom up,domain knowledge
Journal
13
Issue
ISSN
Citations 
1
1067-5027
10
PageRank 
References 
Authors
0.66
0
2
Name
Order
Citations
PageRank
Qing Zeng154767.98
Tony Tse211713.40