Title
Rare World: Designing for Dispersed Populations with Rare Diseases.
Abstract
Researchers have created innovative designs to address common chronic conditions, but little is known about how to design for or even study rare disease populations. I have completed an interview study and a study in a Facebook group to understand the needs and challenges of people with rare disease. I intend to design solutions to the challenges identified in these two studies, focusing largely on support from family and friends.
Year
Venue
Field
2016
CHI Extended Abstracts
Medical education,Rare disease,Interview study,Computer science,Multimedia,Management science
DocType
ISBN
Citations 
Conference
978-1-4503-4082-3
0
PageRank 
References 
Authors
0.34
7
1
Name
Order
Citations
PageRank
Haley MacLeod1546.34