Title
Roles for personal informatics in chronic pain
Abstract
Self-management of chronic pain is a complex and demanding activity. Multidisciplinary pain management programs are designed to provide patients with the skills to improve, maintain functioning and self-manage their pain but gains diminish in the long-term due to lack of support from clinicians. Sensing technology can be a cost-effective way to extend support for self-management outside clinical settings but they are currently under-explored. In this paper, we report studies carried out to investigate how Personal Informatics Systems (PIS) based on wearable body sensing technology could facilitate pain self-management and functioning. Five roles for PIS emerged from a qualitative study with people with chronic pain and physiotherapists: (i) assessment, planning and prevention (ii) a direct supervisory and co-management role, (iii) facilitating deeper understanding, (iv) managing emotional states, and (v) sharing for social acceptability. A web-based survey was conducted to understand the parameters that should be tracked to support self-management and what tracked information should be shared with others. Finally, we suggest an extension to previous PIS models and propose design implications to address immediate, short-term and long-term information needs for personal use of people with chronic pain and for sharing with others.
Year
DOI
Venue
2015
10.4108/icst.pervasivehealth.2015.259501
PervasiveHealth
Keywords
Field
DocType
Chronic pain, quantified-self, self-management, physiological sensing, emotional wellbeing, wearables, personal informatics
Medical education,Chronic pain,Personal informatics,Information needs,Multidisciplinary approach,Computer science,Self-management,Wearable computer,Knowledge management,Computer network,Pain management,Qualitative research
Conference
ISSN
ISBN
Citations 
2153-1633
978-1-63190-045-7
2
PageRank 
References 
Authors
0.39
13
5
Name
Order
Citations
PageRank
Sergio Felipe120.39
Aneesha Singh210011.76
Caroline Bradley320.39
Amanda Williams412611.24
Nadia Bianchi-Berthouze5123998.61