Paper Info
Title
Two Studies on Twitter Networks and Tweet Content in Relation to Amyotrophic Lateral Sclerosis (ALS): Conversation, Information, and 'Diary of a Daily Life'.
Abstract
To date, there is no research examining how adults with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND) and severe communication disability use Twitter, nor the use of Twitter in relation to ALS/MND beyond its use for fundraising and raising awareness. In this paper we (a) outline a rationale for the use of Twitter as a method of communication and information exchange for adults with ALS/MND, (b) detail multiple qualitative and quantitative methods used to analyse Twitter networks and tweet content in the our studies, and (c) present the results of two studies designed to provide insights on the use of Twitter by an adult with ALS/MND and by #ALS and #MND hashtag communities in Twitter. We will also discuss findings across the studies, implications for health service providers in Twitter, and directions for future Twitter research in relation to ALS/MND.
Year
DOI
Venue
2016
10.3233/978-1-61499-666-8-41
Studies in Health Technology and Informatics
Keywords
Field
DocType
Twitter,tweet content,Amyotrophic Lateral Sclerosis,Motor Neurone Disease,severe communication disability,Twitter research
Communication disability,Conversation,Motor neurone disease,Information exchange,Amyotrophic lateral sclerosis,Knowledge management,Artificial intelligence,Health services,Medicine,Applied psychology
Conference
Volume
ISSN
Citations 
227
0926-9630
0
PageRank 
References 
Authors
0.34
0
2
Name
Order
Citations
PageRank
Bronwyn Hemsley101.01
Stuart Palmer2364.01