Title
From Narratives to Numbers: Data Work and Patient-Generated Health Data in Consultations.
Abstract
This article presents preliminary findings on how the introduction of patient-generated health data (PGHD) triggers changes during patient-nurse consultations. This article builds on a two-year case study, examining the work practice at a cancer rehabilitation clinic at a Swedish Hospital using PGHD. The study focuses on how nurses' use data, gathered by patients with a mobile phone app, during consultations. The use of PGHD introduce a change in the translation work, the work of turning rich patient descriptions and transform them into data, during the consultation for documentation and clinical decision-making. This change affects precision, questions asked and the use of visualizations as well as the patient-nurse decision making.
Year
DOI
Venue
2018
10.3233/978-1-61499-852-5-491
Studies in Health Technology and Informatics
Keywords
Field
DocType
translation,data work,patient-generated health data,PGHD,cancer rehabilitation
Information system,Medical education,Informatics,Knowledge management,Narrative,Medicine
Conference
Volume
ISSN
Citations 
247
0926-9630
0
PageRank 
References 
Authors
0.34
0
4
Name
Order
Citations
PageRank
Tomas Lindroth1154.78
Anna Sigridur Islind204.06
Gunnar Steineck302.37
Johan Lundin423.13