Name
Title | ||
|---|---|---|
Implementing a universal informed consent process for the All of Us Research Program. |
Abstract | ||
|---|---|---|
The United States' All of Us Research Program is a longitudinal research initiative with ambitious national recruitment goals, including of populations traditionally underrepresented in biomedical research, many of whom have high geographic mobility. The program has a distributed infrastructure, with key programmatic resources spread across the US. Given its planned duration and geographic reach both in terms of recruitment and programmatic resources, a diversity of state and territory laws might apply to the program over time as well as to the determination of participants' rights. Here we present a listing and discussion of state and territory guidance and regulation of specific relevance to the program, and our approach to their incorporation within the program's informed consent processes. |
Year | Venue | Keywords |
|---|---|---|
2019 | Biocomputing-Pacific Symposium on Biocomputing | Informed consent,conflicts of law,choice of law,ELSI,bioethics |
DocType | Volume | ISSN |
Conference | 24 | 2335-6936 |
Citations | PageRank | References |
0 | 0.34 | 0 |
Authors | ||
6 | ||
Name | Order | Citations | PageRank |
|---|---|---|---|
| Megan Doerr | 1 | 0 | 0.68 |
| Shira Grayson | 2 | 0 | 0.34 |
| Sarah Moore | 3 | 0 | 0.34 |
| Christine Suver | 4 | 0 | 0.34 |
| John Wilbanks | 5 | 0 | 0.34 |
| Jennifer Wagner | 6 | 0 | 0.34 |