Title
Disclosure, Privacy, and Stigma on Social Media: Examining Non-Disclosure of Distressing Experiences
Abstract
Disclosures of distress and stigma on identified social media can be beneficial. Yet, many who may benefit from such disclosures do not engage in them. I examine factors that inform decisions to not disclose stigmatized experiences on identified social media. I conducted in-depth interviews with women in the US who used social media, had experienced pregnancy loss, and had not disclosed about their loss on identified social media. I detail six types of factors related to the self, audience, network, society, platform, and temporality that contribute to non-disclosure decisions. I show that the Disclosure Decision-Making (DDM) framework introduced in prior work explaining disclosures when they do occur, also explains non-disclosure decisions on social media. I show how DDM builds from and bridges prior privacy theories, namely, Communication Privacy Management and Contextual Integrity. I discuss design implications around removing barriers to disclosure to facilitate beneficial disclosures and reduce stigma.
Year
DOI
Venue
2020
10.1145/3386600
ACM Transactions on Computer-Human Interaction
Keywords
DocType
Volume
Communication Privacy Management,Contextual Integrity,Disclosure Decision-Making,Self-disclosure,feminist,miscarriage,pregnancy loss,privacy,reproductive health,social media,stigma,well-being
Journal
27
Issue
ISSN
Citations 
3
1073-0516
0
PageRank 
References 
Authors
0.34
0
1
Name
Order
Citations
PageRank
Nazanin Andalibi112516.28