Title | ||
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User-Centered Design Of A Longitudinal Care Plan For Children With Medical Complexity |
Abstract | ||
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Objective: To determine the content priorities and design preferences for a longitudinal care plan (LCP) among caregivers and healthcare providers who care for children with medical complexity (CMC) in acute care settings.Materials and Methods: We conducted iterative one-on-one design sessions with CMC caregivers (ie, parents/legal guardians) and providers from 5 groups: complex care, primary care, subspecialists, emergency care, and care coordinators. Audio-recorded sessions included content categorization activities, drawing exercises, and scenario-based testing of an electronic LCP prototype. We applied inductive content analysis of session materials to elicit content priorities and design preferences between sessions. Analysis informed iterative prototype revisions.Results: We conducted 30 design sessions (10 with caregivers, 20 with providers). Caregivers expressed high within-group variability in their content priorities compared to provider groups. Emergency providers had the most unique content priorities among clinicians. We identified 6 key design preferences: a familiar yet customizable layout, a problem-based organization schema, linked content between sections, a table layout for most sections, a balance between unstructured and structured data fields, and use of family-centered terminology.Discussion: Findings from this study will inform enhancements of electronic health record-embedded LCPs and the development of new LCP tools and applications. The design preferences we identified provide a framework for optimizing integration of family and provider content priorities while maintaining a user-tailored experience.Conclusion: Health information platforms that incorporate these design preferences into electronic LCPs will help meet the information needs of caregivers and providers caring for CMC in acute care settings. |
Year | DOI | Venue |
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2020 | 10.1093/jamia/ocaa193 | JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION |
Keywords | DocType | Volume |
chronic disease, health information exchange, hospital medicine, patient care planning, patient portals, pediatrics, transitional care, user-computer interface, care coordination | Journal | 27 |
Issue | ISSN | Citations |
12 | 1067-5027 | 0 |
PageRank | References | Authors |
0.34 | 0 | 7 |
Name | Order | Citations | PageRank |
---|---|---|---|
Arti D Desai | 1 | 0 | 0.68 |
Grace Wang | 2 | 0 | 0.34 |
Julia Wignall | 3 | 0 | 1.01 |
Dylan Kinard | 4 | 0 | 0.34 |
Vidhi Singh | 5 | 0 | 0.34 |
Sherri Adams | 6 | 0 | 0.68 |
Wanda Pratt | 7 | 1693 | 165.63 |