Title
Data Sharing in Distributed Architectures - Concept and Implementation in HiGHmed.
Abstract
Medical routine data has the potential to benefit research. However, transferring this data into a research context is difficult. For this reason Medical Data Integration Centers are being established in German university hospitals to consolidate data from primary information systems in a single location. But, small data-sets from one organization can be insufficient to answer a research question adequately. In order to obtain larger data-sets, attempts to merge and provide data-sets across institutional boundaries are made. Therefore, this paper proposes a possible process that can extract, merge, pseudonymize and provide distributed data-sets from several organizations conforming to privacy regulations. This process is executed according to the open standard BPMN 2.0, the underlying process data model is based on HL7 FHIR R4. The proposed solution is currently being deployed at eight university hospitals and one Trusted Third Party in the HiGHmed consortium.
Year
DOI
Venue
2021
10.3233/SHTI210548
GMDS
Keywords
DocType
Volume
BPMN,Data sharing,FHIR,distributed processes,secondary use
Conference
283
ISSN
Citations 
PageRank 
1879-8365
0
0.34
References 
Authors
0
4
Name
Order
Citations
PageRank
Reto Wettstein101.01
Hauke Hund201.35
Christian Fegeler301.35
Oliver Heinze466.71