Paper Info
Title
Unfolding Values through Systematic Guidance: Conducting a Value-Centered Participatory Workshop for a Patient-Oriented Data Donation.
Abstract
Routinely collected clinical patient data posits a valuable resource for data-driven medical innovation. Such secondary data use for medical research purposes is dependent on the patient's consent. To gain an understanding of the patients' values and needs regarding medical data donations, we developed a participatory workshop method, integrating approaches from value-sensitive and reflective design to explore patients' values and translate them into hypothetical, ideal design solutions. The data gathered in the workshop are used to derive practicable design requirements for patient-oriented data donation technologies. In this paper, we introduce the workshop process and evaluate its application.
Year
DOI
Venue
2022
10.1145/3543758.3547560
Mensch & Computer
DocType
Citations 
PageRank 
Conference
0
0.34
References 
Authors
0
3
Name
Order
Citations
PageRank
David Leimstädtner100.34
Peter Sörries200.68
Claudia Müller-Birn3349.95