Title
Friendsourcing the unmet needs of people with dementia
Abstract
The decay of cognitive abilities associated with dementia severely impacts the quality of life of a person and his surrounding ecosystem. First, people with dementia (PwD) increasingly forget the events in their lives leading to depression, isolation and faster cognitive deterioration. Second, their caregivers, besides the emotional burden that having someone close in such a condition carries, are also likely to be overwhelmed with responsibilities and duties in maintaining the PwD with a balanced and decent lifestyle. Our approach tries to address this by providing a prosthetic memory captured in two ways: 1) automatically captures data from the PwD's smartphone and enriches it with automatically retrieved data from the web and, 2) a private social network group (friendsourcing) used to validate and personalize the relevant events in the PwD's life. By sharing the load among a limited but still populated set of trustworthy people we aim to maintain the caregiving process feasible and maintain more people engaged with the PwD. Overall, the ultimate goal is to provide reminiscence, safety and cognitive aids for the PwD that are up-to-date and personally relevant.
Year
DOI
Venue
2014
10.1145/2596695.2596716
W4A
Keywords
Field
DocType
unmet need,relevant event,emotional burden,cognitive ability,caregiving process,trustworthy people,decent lifestyle,cognitive aid,cognitive deterioration,private social network group,captures data,lifelogging
Social psychology,Reminiscence,Lifelog,Social network,Quality of life,Trustworthiness,Psychology,Cognition,Applied psychology,Dementia,Cognitive deterioration
Conference
Citations 
PageRank 
References 
7
0.61
9
Authors
7
Name
Order
Citations
PageRank
João Martins170.61
José Carilho270.61
Oliver Schnell3111.66
Carlos Duarte48112.98
Francisco M. Couto598272.63
Luis Carrico650666.22
Tiago Guerreiro736645.90