Title
Designing Free-Living Reports for Parkinson's Disease.
Abstract
Parkinson's disease is a progressive neurodegenerative disorder that is also characterized by its motor fluctuations throughout the day. This makes clinical assessment to be hard to accomplish in an appointment as the patient status at the time may be largely different from his condition two hours before. Clinicians can only evaluate patients from time to time, making symptom fluctuations difficult to discern. The emergence of wearable sensors enabled the continuous monitoring of patients out of the clinic, in a free-living environment. Although, these sensors exist and they are being explored in a research setting, there have been limited efforts in understanding which information and how it should be presented to non-technical people, clinicians (and patients). To fill this gap, we started by performing a focus group with clinicians to capture the information they would like to see devised from free-living sensors, and the different levels of detail they envision. Building on the insights collected, we developed a data-driven platform, DataPark, that presents usable visualizations of data collected from a wearable tri-axial accelerometer. It enables report parameterization and includes a battery of state-of-the-art algorithms to quantify physical activity, sleep, and clinical evaluations. A two-month preliminary deployment in a rehabilitation clinic showed that patients feel rewarded and included by receiving a report, and that the change in paradigm is not burdensome and adds information for clinicians to support their decisions.
Year
DOI
Venue
2019
10.1145/3290607.3313032
CHI Extended Abstracts
Keywords
Field
DocType
Parkinson's disease, accelerometer, data-driven, free-living, wearable technology
Parkinson's disease,Disease,Data-driven,Software deployment,Wearable computer,Computer science,Patient status,Human–computer interaction,Medical emergency,Wearable technology,Focus group
Conference
ISBN
Citations 
PageRank 
978-1-4503-5971-9
0
0.34
References 
Authors
0
4
Name
Order
Citations
PageRank
Diogo Branco100.34
Raquel Bouça200.34
João Ferreira331.75
Tiago Guerreiro436645.90