Title
An Online Community for Patient with Psoriasis with Built-in Self-Reported Questionnaires.
Abstract
This study presents an online psoriasis community developed with dermatologists in a PHR. We describe the interaction of users with this platform and the relationship between the use of self-report questionnaires, their results and users' subsequent contact with the healthcare system. Out of 2175 users that interacted with the platform, 477 visited the forums. 60% of those who completed questionnaires presented at least one abnormal result that prompted a recommendation for an outpatient visit. Although our data suggest a trend, we failed to find a statistically significant association between questionnaire severity and visits scheduling. To our knowledge, this is the first study that analyses the relationship between patient self-reported disease severity and the subsequent contact with the healthcare system.
Year
DOI
Venue
2021
10.3233/SHTI220134
World Congress on Medical and Health (Medical) Informatics (MedInfo)
Keywords
DocType
Volume
Personal Health Records,patient online communities,psoriasis
Conference
290
ISSN
Citations 
PageRank 
1879-8365
0
0.34
References 
Authors
0
12